Tuesday, November 6, 2012

Defeated by Grocery Shopping

"Some people meet people in the grocery store, but I get my tomatoes and I'm out." ~Ryan Seacrest

Grocery shopping has always been the one thing I felt I could still manage on my own.  I was still capable of bending to the lower shelves and reaching to the higher shelves.  I could even manage to position the cart just right so that the dog food would fall almost exactly where I needed it to into the cart.  During flares, I would take one of my kids or my husband to do any extra running back for forgotten things or to do the heavy lifting.  But, I was still managing it.

All of that has now changed.

I can't handle the grocery shopping.



Thanks to Hurricane Sandy and an upper respiratory infection, I am currently coming down off of a shoulder, rib cage, hips, and back flare....rheumatoid arthritis and fibromyalgia respectively.  However, life must go on for my family, which by the weekend includes my son going to his dad's house, my husband going to his dad's house (who is very ill....we go to relieve Chris' sister who is there 24/7) and taking along my other son/stepson because he needs to spend some time at PawPaw's house.  On Saturday, I had been down and out for 2 full days and thought I needed some fresh air and sunlight.  What better reason to get out of the house than to go to the grocery, right?  Go out with a purpose.

Grabbing the cart to have something to lean on, I began to meander through the store.  I didn't have a list, which is unusual for me, but looking back that should have been an indicator that I wasn't feeling up to this.  Normally I'm on a mission, but today due to the lack of list, I instead took to wandering through each aisle to see what we needed.  We have the mainstay items.  This week we were in need of snacks.  Two pre-teen boys require a lot of snacks....some healthy, some not. And I digress......

By the time I reached the toilet paper aisle, I couldn't lift it.  Think about that for a minute....I couldn't lift a package of toilet paper.... At this point, I had come to the conclusion that I couldn't really lift anything above waist level or anything large and awkward that may be below waist level.  When I tried, every muscle and joint from the waist up locked up and I was gripped with pain.  And I still had to get milk, dog food, some 2 liters of soda....heavy things for me.  And extremely painful things for me.

When I tried to lift the milk into my cart, I felt like I was going to fall to my knees.  You know, that scene where  milk spills everywhere and I just lay there waiting for the pain to pass.  Now, that didn't really happen, but I could see it happening in my head.  It took me a good 3 attempts to get a gallon of  milk into my cart.  And then I needed to get another gallon.  Oy vey.

 So, 2 hours later, a lot of  heavy breathing, crying, sweating....I make it to the check out counter.  At this point, I could care less that I'm over budget and I could care less how many fuel points I'm going to get out of this trip.  What I do care about is the bag boy.  The one who it seems I've interrupted his doing nothing to load a bag of dog food into my van.  And as we stand in the cold damp parking lot, with the back of my van opened, sitting in a handicapped spot.  He throws the bag of dog food in the van, looks at me and says, "Is that it?"

No.

And if I had the energy I'd smack you in the back of the head for asking.
You're already here with me....obviously struggling....just help me load some groceries into my car.

If my children act that way.  I will punch them.  In the face.


Wednesday, August 29, 2012

Do...Re....Mi...Fa...So....La....Ti...........

(*adapted from the award winning musical "The Sound of Music)
"Let's start at the very beginning,
A very good place to start.
When you read you begin with
(child)
A..B..C..
When you eat you begin with
Do...Re...Mi...
Do...Re...Mi...

The first three things I'll avoid to eat are
Dough
Red Meat
Caffeine

So, after the past couple of weeks I've had and especially the last 7 days in particular, I decided that it was times to start at the very beginning.  Per my lovely PA I am definitely having a hard time making the transition from Humira, which seems to be out of my system (really?! No shit!!) to the Enbrel that may take 4-6 weeks for me to really feel anything.  However, there's this flare up of fibromyalgia that seems to have come out of no where which makes it almost impossible to sleep deeply.  I sleep 2 hours at a time. Not to mention they gave me a steroid shot, which may mean that I won't get ANY sleep tonight.....just a typing maniac.

Any-who....that's where I'm backpedaling....where it comes to my fibro,  Ideally, I should be off of all pastas, potatoes, starch, carbs, etc and amping  up my proteins, fruits and veggies.  I was doing really well on this plan until I got fatty liver disease diagnosed and was told to cut back on the proteins in order to help manage my liver.  So, I am going to slowing ween myself back into this no carb high protein world.  I'm starting with dough as in all of them (pie, pizza, cookie, cake, bread.....anything that begins with a dough to make.)  Also giving up red meat, which really isn't that hard for me, unless you count like ballpark hotdogs.  Yumm-o.  Caffeine....this is a biggie.  No coffee, no tea, no Pepsi.....I guess that means more water.  I just have to make the change.

Also included is using things that I know are just naturally helpful.  Fresh tuna and Fresh salmon, turmeric, sweet potatoes...all have anti inflammatory properties that could really be used to my benefit as well as green tea. (sllluurrrrrrrppppp!!!!!  Ahhhh!!!!)

If you don't know where thinks went wrong then, well.....

Let's start from the very beginning. 

A very good place to start.


I'm on pain medication  that makes me say  things I'd never say otherwise.

Tuesday, November 8, 2011

A Tuesday Tantrum - The Many Faces of Screaming

"LORD my God, I called to you for help, and you healed me" ~Psalm 30:2 (NIV)


In the past 4 days I have felt like screaming....

The screaming pain......

Screaming because the pain is so intense and nothing is helping it go away.  Not heat, not cold, not narcotics, not rubs, not creams....nothing.  I feel like the only thing left to do is scream.  Or is it the annoyance that I don't even know why my joints have flared up this time? Sure the weather is up and down, and my stress level is high, but nothing out of the ordinary.  Why do I hurt?!



The scream of frustration.....
You kow those days when you can't do anything for yourself?  Kind of like when you can't lift the milk out the refrigerator, or open the jar of spaghetti sauce to fix your family dinner. But the many faces of frustration could be a whole different post when you look at all the areas that chronic pain touches. The scream of frustration happens more than it should and a lot of times leaves me feeling like I'm somewhat out of control.



The scream of forced surrender (a.k.a. a pity party)......

You've been there.  Don't deny it.  It's the "I-can't-take-living-like-this-any-more" kind of scream.  Maybe more likely referred to as a cry, a wail, a sob.   It's the end of your rope pity party that anyone who deals daily with pain will eventually get to.  There is very little that will help  this emotional scream.  I would recommend chocolate, hugs, Hallmark made for T.V. movies, puppies, and depending on your tastes maybe a glass of wine.  I promise your mood will pass and you'll get your groove back, but it's okay to have these days.  Don't dwell there, though.

The scream of ANGER.......

I'll admit, I want to scream a lot in anger.  Anger at the disease, anger at the life changes I've had to make, but most of all......if there is one thing that REALLY makes me angry enough to scream it's ignorance.

(*I will make the disclaimer that I am not perfect and at times I say things that I shouldn't, but with God's grace, I am forgiven and continue to make every effort to look at all perspectives of a situation before opening my all too human mouth.)

I have very few people in my life that "get it". But that being said, even the ones that get it for the most part, have had moments where they judge my current situation or if I'm REALLY sick.  I understand that it's difficult when I don't look sick.  However, these people know me and choose to suppress the judgement in order to support me because they know my character.

My difficulty comes into play when I get the scowls from people because I'm parked in a handicapped spot at the grocery, or the whispering of co-workers because they can see an arthritis patch stuck to my back and peeking out from the collar of my shirt. If you don't know me, or have chosen NOT to get to know me, then you have no right to make the decision of how sick I am.  You will never be able to see the level of pain, and I can guarantee you that every day I'm in pain.  I make the choice to mask it and to try to be normal.  Perhaps others should be judging me based on my strength to keep pushing instead of judging me on the days that I can't keep going.
I can only do so much to help educate my friends and family about RA and the effects it has on daily living.  Do me a favor.....if you know someone dealing with chronic pain, find out why and care enough to do some research.  I love But You Don't Look Sick that uses the "spoon theory" to help explain to friends and family and I also like The 60-second guide to RA from Rheumatoid Arthritis Guyas a fun way to discuss RA with my family.

  • How do you talk to friends and family about your disease?
  • Or do you not discuss it at all because it makes you want to SCREAM so much?

Monday, October 10, 2011

Fun Food Review - Pumpkin Pie Pop Tarts



Okay....I'll admit it.....I'm a Pop Tart JUNKIE!! I have been closeted about my addiction for years, but when my mom showed up at my house this past weekend with this "limited edition" box of Pumpkin Pie Pop Tarts, I decided I needed to break my silence. But let me just tell you...there is a very good reason why they don't make these all the time. America would be even more morbidly obese than they are today. Everyone who loves Pumpkin Pie would be in heaven to be able to get it in such a convenient package and in only 5 minutes from the toaster.

I am a firm "toasted" Pop Tart eater...not microwaved or raw...toasted. So when I pulled these little babies out of the package and popped part of the crumbled crust in my mouth, I was not impressed. Just regular old Pop Tart crust. Bummer. My skepticism was mounting at what seemed to be an ideal breakfast treat.


Then, I discovered the filling and oh, what a joy. A burst of Thanksgiving joy dancing around my taste buds. All the cinnamon, clove, ginger, nutmeg pumpkin pie spicey goodness and sprinkles to boot. Sprinkles make everything good. I know I can't be the only one who believes in the power of sprinkles.

Final thought: Get a box. Get two or three. You may not be able to find them again for a long time, if ever. And you'll want them. Oh yes...you will want them, again.

Wednesday, October 5, 2011

Wordless Wednesday - Here kitty, kitty.......

It's been a constant struggle climbling up hills and falling down valleys the past month or so for me. So, some days you just have to channel your inner queen of the jungle, ya know?


Monday, September 26, 2011

A New Kind of Commitment Phobe

Commitment is the enemy of resistance, for it is the serious promise to press on, to get up, no matter how many times you are knocked down. ~David McNally

If anyone has done a bible study or heard some teaching on spiritual gifts, you'll know what I mean when I say that I am spiritually gifted in hospitality. I have always loved having people in my home....small groups, friends, family, extra pets....you name it. In the past year or so, however, having flare up after flare up after flare of either fibromyalgia or rheumatoid arthritis has hindered my openness. Not so much my spirit of hospitality, but more of the ability to keep the commitments I make. Whether it's a grouchy attitude or pure exhaustion, I simply don't want company. Maybe it's more that I don't want anyone seeing how dreadfully dirty my unkempt house is thanks to chronic pain, either.

Along those same lines, I've lost my drive to go out, too. Let me rephrase that. I've lost my drive to go out past 5 o'clock in the evening. It's around supper time when my get up and go, got up and went most of the time. My husband and I have had long conversations about going to the movies in particular. I have 2 issues with movie theaters....1.) The steps. To get to the good seats, you have to climb a plethora of steps. 2.) The uncomfortable seats combined with the cold climate in the theater. Thus, my husband who LOVES going to see movies in the theater is having to go by himself more or with friends more often.

Both of these things make me incredibly crabby. I don't really consider myself to be a fuddy-duddy or boring by any stretch of the imagination. But these two things in particular make me feel old and like not much fun at all. So I found myself uttering those horrible words today, "I can't commit to that right now, but...." **sigh** Needless today, most days now, I just don't have the energy or the drive to press on and to get up no matter how many times I'm knocked down. I need to be awesome.

For lack of better wording.....I need to get my mojo back.

Sunday, September 11, 2011

Learning Curve


The past week leading up to National Invisible Illness Awareness week has been one of the most difficult for me since I was first diagnosed 5 years ago. Today was my first day out of my house in 10 days....you could say I am suffering from a bit of cabin fever on top of everything else.

My RA has been "active" for months now. I'm not even sure I realized that I was in a "flare" until it was basically too late to control. I smile to myself because up until last week, I hadn't realized the difference, even though I have always considered myself to be well-educated when it came to this disease. So either I am incredibly strong or significantly in denial as to the level at which my disease has progressed. I'm going with the latter of the two.


Without details, it basically comes down to the fact that I have gone through all of my basic options for treatment and am now moving into the treatment for "moderate to servere" rheumatoid arthritis. As I'm nodding in agreement at what my rheumatologist was telling me last week, in my head all I can hear is "WHAT?! Are you SURE?!" I came home talking to myself and telling myself that I'm fine and that I can still work.... I can still take care of my family....I can still...um...no, you're right......I am having trouble with those things.

And, of course, the reality of taking stronger, more expensive medications is also starting to sink in as I read about the side effects and the precautions that you need to take and what you may be susceptible to, all along while paying anywhere from $150.00 to $1000.00 a month (depending on if I've met my deductible or not....geesh....). Seems like a high price to pay to get tuberculosis or even to get every virus that I come in contact with for that matter.

So, I'm still contemplating my choices while recovering from some sickness and trying to manage the pain of which is inevitably a flare at this point.

How much of a learning curve do I get for stubbornness again?